Question 1: I’m really interested in hearing more about actual people who have gone through Topical Steroid Addiction/Withdrawal. Where can I go?
Answer 1: Check out the website at www.ITSAN.org which stands for International Topical Steroid Awareness Network. It’s a non-profit organization dedicated to raising awareness about the potential side effects of corticosteroids. Just a bunch of folks from around the world who have been to hell and back because of the lack of disclosure on what steroids can do over a period of time. They can offer a list of doctors who are already aware of the condition and can help patients through the withdrawal process. By the way, ITSAN created this simple cartoon video that explains it all right here.
Question 2: Has anyone documented the actual Topical Steroid Withdrawal process in details?
Answer 2: Yes! One of the best personal accounts is written by Cara Ward. She has an inspiring writing style about making it through the wicked forest of Topical Steroid Withdrawal in her book, Curing my Incurable Eczema.
Here’s my review of her book:
Question 3: Has anyone made a documentary or videos on YouTube, so I can see similar cases like mine and compare if I may be in Topical Steroid Addiction/Withdrawal?
Answer 3: Yes! Another great resource is the YouTube channel of Brianna Banos, where you can find her documentary, PREVENTABLE: Protecting Our Largest Organ. She has continuously posted videos throughout her journey and while she was making her documentary.
These ladies are just a few of the TSW Warriors that have been courageously trailblazing this awareness movement. They continue to offer their support through their own stories publicly to those in need of more answers.
In her documentary, Briana quotes the National Eczema Association (NEA) stating, “86% of patients were unsatisfied with their eczema treatment and 92% felt their doctor didn’t even know how to treat them.” Briana then dramatically makes an obvious point. “If that’s not an outcry for reform, better education, and awareness, then I don’t know what is…”
Question 4: Are there any support groups on Facebook or Instagram I can join?
Answer 4: Here’s a list…you’ll inevitably find most to be very caring individuals and groups. The administrators try to keep unwanted solicitations and people selling out of the support group forums.
- ◆ ITSAN Topical Steroid Withdrawal RSS Support
- ◆ Topical Steroid Education (this one is research heavy with medical info)
- ◆ Eczema & Topical Steroid Withdrawal for WOMEN – Healing Through Positivity
- ◆ Topical Steroid Addiction
- ◆ Red Skin Syndrome/Topical Steroid Addiction Awareness (TSA) Group
- Question 5: Are there doctors that have published information on this condition?
- Answer 5: YES! Some of the trailblazers in treating and spreading awareness are:
◆ Dr. Koushik Lahiri website with over 85 publications
Question 6: Okay, you’ve got my attention and I want to learn more about the deeper cause, like whatever that original problem was to begin with before this nightmare! Where can I find more information?
Answer 6: Remember in Chapter 1, when I said you get a text message in the form of a rash, irritation or swelling on your skin? It’s THAT message from inside that matters. You’ll find so many answers of those messages translated in my book, SKIN CONFESSIONS. You will hear straight from the source in her own voice, DERMA! She explains everything. She single-handedly wants to save the world by saving your skin. So this is your chance to hear it directly from her. You can totally disregard her sassy attitude and potty mouth. But she’s loaded with medical research that backs her wacky claims and weird ideas like how the skin can hear, smell, see, and tell time and create its own sunscreen. Once you hear her voice, she gets under your skin and will nag you until you change those little bad habits that have been handicapping her all along!
Derma will talk to you about her best friends forever (BFFs) inside your body. She will gossip about all their drama. Once you get to know all their personalities, and who the real bullies are inside of you, it will be easier to understand how your body and immune systems really work.
Then Derma dives deep, in so many baby steps, about what you can do to make your skin cooperate a lot more. Simple daily tricks that will make a world of difference and lighten her load of all the toxins and problematic products you’ve been using on her. She will open new ideas on re-setting your immune system that are cutting edge and some that have been around for ages and just now getting legitimate medical respect.
Look…skin conditions are reaching epidemic levels in most industrialized countries. Eczema has now reached 1 in 10 adults and almost 2 out of every 10 children. You can’t blame that on genetics! The book SKIN CONFESSIONS dives deep into the causes and alternative cures outside the realm of yes, you guessed it, topical steroids! FYI – the book is not all about skin – it’s about the immune system and how to recalibrate it with the most innovative and exciting adventurous and fun ways!
Derma also has a wild imagination and reveals what it is/was like to be the skin of famous personas like Jack LaLane, Princess Diana, Tiger Woods, Alicia Keys, and Arianna Huffington. Derma brings a light-hearted voice to help you understand her many personalities through her fictional portrayal of herself with these incredible people.
Get to know Derma in